Tuesday
Mar202012

Challenging the Myths of Autism by Jonathan Alderson

This is a readable, fascinating, well researched and important book. Alderson discusses affection, stims, IQ, imagination, critical time period to change, evidence based treatments, and more. How's this: "Children with autism should be pushed to socialize as early as possible." A myth. Did you know that? If there's a person with autism in your life, reading this will be a good investment of your time.

Friday
Jan062012

Preventing Your Child’s Meltdowns During the Holidays

You may have missed this report which was available to some before the holidays. Either way, there will be more holidays and more meltdowns, so I hope this will help. 

The holidays are coming up, and if you’re a parent, especially a parent of a sensitive child, then you know you’re going to be dealing with some meltdowns.

The purpose of this report is to go over four causes for meltdowns, and six things you can do to minimize those meltdowns by being better prepared for the holidays.

What can cause a meltdown?

  1. Assaults on the child’s sensitive senses:

Smells, light, touch, sounds. These can be perfumes, cooking smells, blinking holiday lights, clothes that are scratchy, loud music, loud conversation

  1. Change of routine

There’s no school, family is visiting, or your family is going to grandma’s. Sensitive kids may be stressed by all of this even if they don’t particularly like school, or they adore the family members they’ll get to see, or they think that grandma’s is the loveliest place on earth.

  1. Change of diet- perhaps you’ve been very careful in your day-to-day routine to avoid foods that your child is sensitive to, but then during the holidays there are other foods around, other people’s cooking, and your child may be exposed to foods that he or she is better off without.
  2. Parents are often stressed around the holidays, and this stress is contagious. You may have a lot of shopping to do, and perhaps you’re taking your child with you, you may have a lot of cooking or cleaning or whatever other preparations, and you may be less patient with your child and less able to offer the quiet, pleasant time that you normally would.

So what can you do about it?

1. Adjust your expectations. Expect that your child will melt down, expect that some family members will criticize you or your child. Try to be patient. Don’t blame yourself or your child.

2. Prepare your child. The fewer the surprises, the better. Of course, each child is different, but they may understand you even if you can’t get a confirmation from them. And when you prepare your child, try to do two things –

            Tell your child what to expect regarding the next day’s schedule, such as – we’ll get up at eight and have breakfast and drive to aunt Marilyn’s, and you’ll get to play with Peggy and Marie or watch TV with them until lunch, and then… whatever.

            And try to prepare your child to the sensory input he or she will be facing. For example: Uncle Denny will probably play the piano and sing holiday songs, and he’ll have a Christmas tree with colorful blinking lights, and it will probably be quite warm. There will be a strong smell of cooking of such and such foods.  

3. Prepare your family or guests. You can tell them things like:   

Johnny doesn’t like to be touched or hugged. He’ll initiate physical contact when he’s ready for it. Johnny will be much more comfortable with you if you don’t wear perfume, and if your clothes are from natural materials rather than synthetics.

4. Watch the food like a hawk. If you’ve been very careful with your child’s diet, avoiding foods that he or she may be allergic or sensitive to, then during the holidays you should be even more vigilant because some of the food may be cooked by others. You’d want to know the ingredients in the foods others have prepared, or even ask them in advance to modify their recipes as needed. I’ve heard of a child who was brought into the emergency room twice because grandma just couldn’t believe that her bean dish made him sick the first time around, so she just had to try it on him a second time. Grandma may also think that part of her job description is to spoil the little ones and let them have the treats they normally don’t get to have at home.

5. Watch for signs of a pending meltdown. You know your child best, so perhaps you have your own special clues, such as extra giggling or bounciness or certain hand movements which indicate that your child’s behavior is about to go out of control. Judith Bluestone, the founder of HANDLE, listed several signs of stress to watch out for. Some of these are red ears, changes in breathing patterns (holding his or her breath or hyperventilating) or changes in muscle tone (tightening up or needing to lean or sprawl more than before). Take your child to a quiet room to have a break from the mayhem, if possible before the meltdown.

Last but not least, watch your own stress level, for your child’s sake and for your own. Ask yourself what of all the preparations are a must, and where you can lighten up your load. You may be surprised to find out that some people have a really happy holiday even if they bought a turkey that was already cooked. Ask yourself if it’s really a good idea to have family stay over and even sleep in Johnny’s room, or if it’s more sensible to have your in laws stay at a hotel. Take care of yourself.

 

 

Thursday
Sep222011

My Stroke of Insight by Jill Bolte Taylor, 2006

A Plume book, 2009

Loved it.

Do yourself a favor, and read it before someone you know gets a stroke or a brain injury.

Jill Bolte Taylor, a brain scientist, suffered from a massive stroke at age 37. She recovered from it and has been able to tell the fascinating tale of what it felt like to get acquainted with her right hemisphere as her left one shut down. I loved her writing; I loved the two chapters about the function of the brain, and I found her insights into the recovery of an injured brain invaluable. If you're helping someone recover from a brain injury, keep this book handy. Here are a few of her suggestions:

* Protect my energy. No talk radio, TV; or nervous visitors! Keep visitation brief (five minutes)

* Ask me multiple-choice questions. Avoid Yes/No questions

* Expect me to recover completely

* If I can't find an old file, make it a point to create a new one

... this is just a taste of it. You want the rest of the list? Read it.

Monday
Aug012011

Poisoned for Profit by Philip and Alice Shabecoff, 2010

Subtitle: How Toxins Are Making Our Children Chronically Ill

Chelsea Green Publishing, 2010

Originally published by Random House in 2008 as Poisoned Profits

 

If you aren’t alarmed yet by the number of American children who are chronically ill – suffering from cognitive or behavioral problems, cancer, asthma, birth defects and other ailments (are we talking about your own child, grandchild or student?) then this book will be your wake up call. As the environment gets more polluted by toxic waste sites, pesticides, industry and power plants, and dangerous substances in our food, cleaning materials and cosmetics, more children and their families are suffering. I heard Alice speak about the subject at a presentation she made in San Francisco and I just had to get the book (yes, my copy is autographed).

 

The very well written book is a thorough investigation of the toxic threat to children in America. A lot of information, a lot of sensibility, interviews with the right people (more than 170 of them).

 

What you also will find in this book is a call to action (with specific suggestions) and a lot of resources that you can use to minimize the exposure to toxins that your children (and you) may be suffering from.

http://www.poisonedforprofit.net/

Sunday
Jul312011

The Horse Boy, a documentary, 2009


Parents of children with autism often go to great lengths to try to help their children recover. The Isaacsons did too. They traveled with their son Rowan all the way to outer Mongolia to ride horses and meet with shamans. On a superficial level this may sound very different from the paths chosen by the families I meet, but I was struck by how their journey was similar to my own and that of other families. Always wondering if they’re doing the right thing for their child, and if any changes that they see in him would have happened anyway; fearful that his difficulties will persist, wondering if he’ll be cured; in the process learning to accept that he is who he is, learning to take cues from his non-verbal communications rather than follow an agenda, and realizing that even with autism their child can be happier, more social, more verbal, more free.

This film was originally named “Over The Hills And Far Away”. I loved it.

To learn more and view a trailer, http://www.horseboymovie.com/Film.php